Nordic NCL 2026

Uniting families and professionals to improve the lives of children with NCL through the annual Nordic NCL conference

The Nordic NCL Conference is a growing cross-border forum that unites families and professionals to share latest research, advance care, and build a strong support network for children affected by Neuronal Ceroid Lipofuscinosis.

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Registration open - early bird until 1 September

Registration for the Nordic NCL Conference 2026 is open - and the early-bird rate is available until 1 September.

We look forward to welcoming clinicians, researchers, therapists, other professionals, and families to Malmö in December.

Hope to see you there!

Thank you for participating in 2025 - see you in 2026

Malmö, December 2025
Malmö, December 2025

The Nordic NCL Conference brings together families, clinicians, researchers, therapists, educators, and international experts working across all forms of Neuronal Ceroid Lipofuscinosis (NCL/Batten disease) - a group of ultra-rare neurodegenerative disorders that cause childhood dementia.

The conference provides a unique Nordic platform for cross-disciplinary knowledge exchange, collaboration, and community building. To our knowledge, no other European forum offers this dedicated, NCL-focused environment.

We were thrilled to see so many participants in the 2025 conference - we hope to see you all again in 2026.

Program

Session highlights

A selection of sessions from the conference programme — see the full schedule on the Program page.

Tuesday 1 December
12:30
Possibility for light lunch & networking afternoon
From 16:00
Check in
From 19:00
"Low key" networking reception (pizza/wine/beer)
Wednesday 2 December
08:45
Conference starts
17:00
Conference Day 1 ends
19:00
Dinner
Thursday 3 December
09:00
Conference starts
16:00
Conference ends
View full program

Sponsors & partners

Our sponsors & partners

The conference is made possible through collaboration and support between public institutions and private sponsors.

Sponsorship

Become a sponsor

Sponsoring Nordic NCL 2026 puts your organisation in front of hundreds of practitioners, researchers, and decision-makers from across the Nordic region. Your investment directly funds the conference programme, speaker travel, and the networking events that make this community thrive. Sponsors receive prominent brand exposure across conference materials and communications, as well as exclusive access to our attendee network.